Jeffrey Roe

Well, I spent the whole day, Tuesday, at Moffitt having blood drawn, 17 tubes, & pulmonary function test, CT scans of chest & sinuses and meetings with my nurse coordinator, Regina, & social worker, Charlotte. I tried to shorten duration by trying to get imaging done during gaps between appointments but my 4 pm time was when I was called for CT scans. Long, kind of tiring day but all went well.

Wednesday had me back at Moffitt at 6:45 am for my 2nd bone marrow biopsy. First was done by my hematologist back on 4/2. This one went smoothly, less discomfort than prior which was good. Glen and the team caring for me were great. It was scheduled for 7:45 am & I left Moffitt @ 8:30 am. Had to have a driver, in case of sedation, but I took the procedure with local anesthetic only, as done with first biopsy. So, my dear Nory & I got to enjoy some breakfast, relaxation, lunch & a late afternoon nap. That’s a rare treat for me, typically working everyday.

Today, I’ve had my EKG & Echocardiogram done succinctly. So, I’ve returned to the BMT clinic to possibly get my P.A. appointment done prior to its 1 pm schedule. One hour down & one to go as I wait & update my journal. Filled & reviewed varied treatment forms. Definitely kinda scary as each can remind you of the associated risks these treatments carry with them. Stay positive & believe fully that God will help see you through it all. Besides, with MDS there aren’t any real lasting treatments than can provide substantial benefit or improvement of your condition other than a bone marrow transplant (BMT). Thanks to all my friends, colleagues & the fine folks at Moffitt for your support, kind words & help.  Jeff