Carelines

Reaching out to a Community of Support

Welcome to Gilbert’s Carelines page! Thank you for coming to support Gilbert in his journey of recovery. Here you can:

Hi my name is Gilbert Arriaga Jr and I am a survivor of Acute Lymphoblastic Leukemia x7 years now. I was first diagnosed with A.L.L about 7 yrs ago and was told I had a month to live without treatment. So I went into treatment using the hyper c-vad chemo regimen for induction for 6 months then 2 more years of daily and monthly chemo on the P.O.M.P regimen. That put me into remission for 2 years but this recent September 2021 the A.L.L came back with a vengeance and I had to stop life and work and taking care of the kiddos to go back into the hospital for 2 months this time. During this last stay for treatment I received thiotepan in huge doses for chemo and also had to do 3 full body radiation treatments that at the least guarantees I will have cataracts within the next 2-10 years that will need surgery. The chemo and the radiation were in such high doses in order to completely wipe out my bonemarrow so I may receive a bone marrow transplant. Praise God this time they found a match! So I had the bone marrow transplant about 1 month ago now and while I'm on upwards of 13 anti rejection medications I have to take to avoid graft vs host disease where the new bone marrow and the old one go to war in my body....the side effects are rough. I'm alive though and I need these medications to keep me alive for the next 12 months when my new bone marrow and immune system finally mature and are in control and no more graft vs host disease trying to take me out during a pandemic. My greatest challenges have been bone pain and memory lapses and tremors but my newest and overwhelming concern is the new insurance year 2022 being upon us. My out of pocket maximum is going to reset to $6,300 meaning that's what I'm going to pay for the year to get treatment assuming they cover all of my medications. I'm still just able to live on a Social security check that keeps a roof over my head but only barely and leaves me with little to eat virtually all of my money going to treatment and transportation to treatment. This has been my driving need to create this account is to try to ask the community to help keep me alive with donations towards these medications and treatments that are the only thing keeping me alive right now and I'm really happy to be alive. I also am looking into the scholarship program that the bonemarrow cancer foundation offers as a grant to help pay for those of us that have received bonemarrow and Hematopoietic Cell Transplantation (HCT) Transplantation  transplants to have a shot at college and not be held back because of this thing we must endure that is a life saving bone marrow transplant. The thing is that you lose your job while you're going through months on end of back and forth treatment and your future becomes immediately in question as you wonder how will your mind and your body be after all of these months and years of treatments and when and how will you actually be able to physically work and what will you even be able to do. That's such a scary situation ,having lost everything and stopped life to dissapear into a treatment facility not knowing if or when you'll get out of the hospital alive and then having past due bills of every kind as well as current ones and. It knowing if you can afford life saving medications. Thanks to the education program I have the option to go to school and be working towards a degree that will secure my financial future instead of just waiting on bankruptcy and no help to get back on my feet and feel like a normal productive human being again. So that's my story in a nut shell and why I'm here. 

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