We are starting a crowd funding by Careline with the recommendation and approval of his doctors.
It was recommended because this procedure is going to be financially difficult for Moe and Lauren. As a family we prepared by allocating and coordinating food shopping, electric bills, heating bills, future bills, etc. but not prepared for the astronomical costs involved his month long chemo stay, the 35 daily oral medicines, co-pays and daily organ protection injections. The cost is projected to be well over $100K.
Moe is currently at Dana-Farber and in the process of a bone marrow transfer due to the development of Myelodysplastic Syndrome, which is beginning to develop into acute myeloid leukemia. Moe has been with Dana-Farber for well over10 years and been anxiously waiting for this day to come.
The Post-Office will provide him with 6-weeks of salary but after that will be down to Lauren’s teacher salary and Moe's social security. Moe’s recovery will continue on for a year at minimum and means he can not leave his home for 1 year. In fact, he can not eat anything other than frozen food and food prepped by Lauren.
History of our Moe:
Moe was born with Shwachman-Diamond Syndrome named by two doctors Diamond and Shwachman. For the first year of his life he lived in the hospital malnourished not being able to digest fats from foods and nutrapenic (low blood cells). It was literally the grace of God that my parents crossed paths with a very special doctor at Children’s Hospital in 1982, Dr. Diamond.
At an early age, he was given a very short life expectancy. With the strength and doctor-like qualities our parents provided him, he made it through each and every single night sick and deathly and lived a fairly “normal” childhood.
There is just so much leading up to this moment and I could go on and on with past health trauma and the struggle of living with a disease such. Please know that as family we all had the understanding and knew that this was going to be the outcome should he live past the expectation of this disease. Although frightening and all other imaginable emotions involved, we are just so excited that when the bone marrow begins to build and new cells develope that he will NEVER have to worry about this form of bone marrow failure again.
One other important piece to this journey is that Moe has been blessed with two donors and they are 10/10 matches, his sister Tiffany and brother Joey. They have both stepped up and said YES without hesitation. Tiffany was chosen and is already prepped and ready for intake. Her 3-hour procedure of removing healthy cells from her body and giving them to Moe. The transfer happens on July 27th.
We thank you all so much and just so blessed to have such amazing friends and family supporting Moe. From the bottoms of our heart and bone marrows, we thank you ❤️
