After the MRI was done, and the Ommaya Resevoir was removed. The next phase of hie treatment to prevent any further cancer growth was going to be Sonidegib. It is called the Sonic Hedgehog treatment. It is a gene based protocol the best I understand it. But Aetna Insurance has... [READ MORE]

Wednesday, sean will go in for another MRI to determine if and how the past chemo treartments have worked. He wil be starting a new chemo Protocol as soon as insurance approves it called Sonic Hedghog.  yes thats the name Sonigib is the new chemo. I am hoping that he... [READ MORE]