Carelines

Reaching out to a Community of Support

All Journal Entries

March 31, 2022 (Day +58)

by Chelsey Brooks
3/31/2022

Recovery definitely isn't a linear path. My blood counts are still good and my skin is healing from the chemo rash, but my appetite is gone again and I've been vomitting more frequently. I lost 8 pounds in the past week and a half. I've lost 51 pounds since my... [READ MORE]

March 17, 2022 (Day +44)

by Chelsey Brooks
3/17/2022

Recovery is still going well, but my blood pressure is still a little low. I still have to sit down to let my heart rate come down after simple tasks, like showering or getting dressed. My hands shake anytime I try to use fine motor skills and my strength is... [READ MORE]

March 8, 2022 (Day +35)

by Chelsey Brooks
3/8/2022

Today is the last day I have to take Cellcept, one of the several immunosuppresants I've been taking. My blood counts are still recovering well, but my blood pressure is low (98/58 yesterday). Hopefully my blood pressure will come up some once the Cellcept is out of my system. The... [READ MORE]

March 1, 2022 (Day +28)

by Chelsey Brooks
3/2/2022

I had my usual doctor appointment yesterday that led to having a dermatologist appointment today. I've had some rashes pop up that they needed to check on. The good news is that it's not GVHD. The rashes are irritation and hyperpigmentation resulting from some of the chemo I had before... [READ MORE]

February 25, 2022 (Day +24)

by Chelsey Brooks
2/26/2022

I have been home for a week now and am still recovering well. My doctor has already decided to only have me come in twice a week instead of 3 times. I still have almost no taste and I have very little energy. Recovery is a long road. Hopefully some... [READ MORE]

February 19, 2022 (Day +18)

by Chelsey Brooks
2/20/2022

I'm home! I was discharged yesterday evening and have been adjusting to being home again. I'm still waiting for the last of the mucositis to pass. I can't taste anything right now and still am not quite to eating solid foods yet, so I'm surviving on juice and smoothies. I... [READ MORE]

February 16, 2022 (Day +15)

by Chelsey Brooks
2/17/2022

Things are starting to get better as my counts are coming up. I still have some mouth pain and digestive issues from the mucositis, so I'm not really able to eat yet and can only drink a little. If things continue improving as well as they have the past couple... [READ MORE]

February 14, 2022 (Day +13)

by Chelsey Brooks
2/15/2022

Since my last post 4 days ago, I continued to get worse. They put me on a dilaudid pain pump and once we got the dosing adjusted where I needed it, it really started helping. I have not had anything to eat since those few sips of milkshake I had... [READ MORE]

February 10, 2022 (Day +9)

by Chelsey Brooks
2/11/2022

I have continued to get worse over the past couple days. With the pain and everything else, I haven't had any actual sleep in about 3 days. I've had a couple small naps on purpose, but at this point the most sleep I get is from slipping in and out... [READ MORE]

February 8, 2022 (Day +7)

by Chelsey Brooks
2/9/2022

I'm entering the lowest point of this whole process. My mouth and entire GI tract are inflammed; it hurts to talk, eat or drink. The inflammation in my gums feels like my teeth are being pulled. All the options they had here to help with the mouth pain (such as... [READ MORE]