Reaching out to a Community of Support

+Day 28 Still here!

By on

There are many idiosyncrasies with long-term hospital stays, and rounds are one of them. You're basically welcoming a team of highly trained specialist into your home not really knowing when they will show up. Dr. Connelly did rounds today. He's our favorite not only cause he's a genius, but because he generally doesn't round before 9:30 or 10. ;) While his IQ and his penchant for later rounds may be mutually exclusive, they are of equal importance and make us love him that much more! Today's major topic was fever. His fever has spiked overnight the last three nights in a row. This has caused some restless nights and a change in mood and appetite. This is all completely normal and the team is used to dealing with this while waiting on engraftment. However, fever is dangerous due to his white blood cell count, so they do everything they can to diagnose and treat. 

I said all that to say, we are not going home today. He back tracked on eating and hydrating himself this weekend and he has had to get platelets every day due to his counts. We will be working on reversing all of this for the remainder of the week and into the weekend. They should be making a decision to send us home or not at the beginning of next week. 

Thanks to everyone for your prayers and support.  



0 comments Comments