Reaching out to a Community of Support

Day + 46 We outside....Well like it's March 2020 #quarantine

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Things can change quickly during the first 100 days post transplant. I ran to the grocery store once and came back to a nose bleed exacerbated by low platelets. He was so tired and weak before the bleed that it took everything in him to handle it during the ten minutes I was gone! So, when they say 24/7 care, they mean it. Fever and pain can start in the blink of an eye, so keeping an eye on him is paramount.

We were readmitted during our last clinic visit. Besides the generalized pain and fatigue he was feeling, he started to get rigors and chills about 40 minutes into his platelet transfusion. The infusion was stopped immediately and sent to the lab for reaction testing. They took some blood to run a blood culture to see if there was an infection. This only takes 24 to 48 hours. No infection was found and we were released.

He's been eating well the last four or five days and is up 2lbs from his post transplant weight but still down ten from his pre transplant weight. The nutritionist will be evaluating him again on Monday to see if the feeding tube can be removed. 

He had to get blood and platelets while we were inpatient this time as well.

So we are quarantined at home like it was March 2020. 

I can't think of anything else to write.

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