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In the days immediately following recieving the bone marrow last Tuesday, he experienced some nausea and tiredness. Signs of mucositis also began to emerge, and was treated, as it has been before symptoms arose, with special mouth wash and oral meds. Big sis and dad were on deck for physical and... [READ MORE]

" I hate this feeding tube," engraftment,and of course, general insanity.

by Trevor Clarke III
5/5/2022

This process is so hard. The meds and chemo make him feel a little crummy and not want to eat. However, his caloric intake and nutrient balance is tracked extremely closely. At the first sign of him starting to fall behind on those indicators, we went ahead and ok'd the... [READ MORE]

Day Zero!!

by Trevor Clarke III
5/3/2022

Dad left for surgery before 8 am this morning. The doctor just came in at 20 after noon to tell us he is in recovery and everything went well. The cells are now heading to the lab for processing, since they have different blood types, then back up to the... [READ MORE]

-2 days till transplant

by Trevor Clarke III
5/1/2022

He's been feeling all the affects of the chemo. His appetite is dwindling, he's cranky and tired. Our friends donated some Roblox, PS4 membership, a ton of movies, more books and by special request beef ramen noodles. It's the only thing that he has shown any interest in eating, besides... [READ MORE]

No twerking on the sixth floor..Tolkien and general insanity

by Trevor Clarke III
4/30/2022

-3 days till transplant! Chemotherapy sucks but is super effective. He's been feeling up and down. We've been binging Disney+. Frozen, Frozen 2, Aladdin, Black Widow, Avatar, Tangled, Moana and, of course, Encanto. Homeschool co-op showed out with a very nice care package including Avengers Monopoly, more games and personal notes... [READ MORE]

I'm getting Crab Legs when I get out of here

by Trevor Clarke III
4/28/2022

Today was weird. Trevor was feeling very down and not able to communicate how he was feeling. He's never had chemo before and it has just been alot for him to process, along with everything else. We were cleared to spend some time on the sixth floor balcony, I was... [READ MORE]

-6Days to transplant

by Trevor Clarke III
4/27/2022

This has been an eventful week. Immunotherapy started last Sunday and Chemo started Tuesday. He is getting thiotepa which causes him to have to bathe every six hours to prevent his skin from burning. It's not too bad, just tiring. He gets up with PT just about everyday despite his... [READ MORE]

We are inpatient!

by Trevor Clarke III
4/21/2022

We are in our temporary home for the next month at Vanderbilt Children's Hospital RM 6741! ... [READ MORE]

Last Transfusion !

by Trevor Clarke III
4/18/2022

Transplant is May 3 and we will be admitted in three days!... [READ MORE]

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Trevor Clarke III

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Trevor Clarke III Journal